Job Description
The University Hospital Vall d'Hebron is highly specialised in rare diseases on a regional, national and international level with its incorporation as full member of 20 of the 24 European Reference Networks (ERNs).
The scientific coordination of the ERN-EuroBloodNet,, the ERN dedicated to Rare Hematological Diseases (RHD), is led by Dr Mañú Pereira, head of the Rare Anemia Disorders research lab within the “CANCER Y ENFERMEDADES HEMATOLOGICAS INFANTILES” group at the Vall d’Hebron Research Institute.
Within the ERN-EuroBloodNet and in line with the upcoming European Health Data Space (EHDS), our team is coordinating several projects on European patients’ registries for rare hematological diseases: we are collecting patients’ data from all over Europe to provide enough evidence for shaping European health policies and to enable researchers to access standardised, comparable data, ultimately aiming at providing better care to patients affected by RHDs.
ENROL (Europe...
The scientific coordination of the ERN-EuroBloodNet,, the ERN dedicated to Rare Hematological Diseases (RHD), is led by Dr Mañú Pereira, head of the Rare Anemia Disorders research lab within the “CANCER Y ENFERMEDADES HEMATOLOGICAS INFANTILES” group at the Vall d’Hebron Research Institute.
Within the ERN-EuroBloodNet and in line with the upcoming European Health Data Space (EHDS), our team is coordinating several projects on European patients’ registries for rare hematological diseases: we are collecting patients’ data from all over Europe to provide enough evidence for shaping European health policies and to enable researchers to access standardised, comparable data, ultimately aiming at providing better care to patients affected by RHDs.
ENROL (Europe...
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